There have been many advances in the ways to monitor glucose levels over the past three decades. Technology has now enabled glucose levels to be continuously monitored via a small sensor that sends results to a ‘reader’ such as on a watch or mobile phone. While this technology has led to many improvements in the management of diabetes, often with improved outcomes, it also increases expectations and the speed at which individuals are to respond.
In particular we are mindful of parents of children and adolescents who often bare the responsibility for diabetes management, the childs safety and ongoing health. Parents who now live with their child’s glucose level in constant view may feel burdened by this level of information and responsibility. Glucose levels vary so rapidly this younger age group and parents have told us that this creates a great sense of angst for them. Then when their child is at school and involved in other away from home activities, they can see the results from afar, yet when out of their control and this moves their angst to the next level. Another problem occurs when the technology fails and they are left without a constant feed of information, often making them feel totally helpless.
The aim of this study: To clarify the burdens that parents of children and adolescents with diabetes may experience when using CGM, the actions taken and resources available to mitigate them, leading to the development of a supportive toolkit.
Design & methods
This is a multiple-method study involving four phases; 1) a literature review, 2) an exploration of the Burden of Treatment Theory in this context,3) interviews with parents and diabetes clinicians, 4) to then apply what is learned from these phases to identify supportive resources for parents in the future