An exploration of the burdens and worries associated with continuous glucose monitoring and identification of mechanisms and supports to overcome them.


   Faculty of Health and Life Sciences

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  Dr Claire McCauley  No more applications being accepted  Competition Funded PhD Project (Students Worldwide)

About the Project

Background.

There have been many advances in the ways to monitor glucose levels over the past three decades. Technology has now enabled glucose levels to be continuously monitored via a small sensor that sends results to a ‘reader’ such as on a watch or mobile phone. While this technology has led to many improvements in the management of diabetes, often with improved  outcomes, it also increases expectations and the speed at which individuals are to respond.

In particular we are mindful of parents of children and adolescents who often bare the responsibility for diabetes management, the childs safety and ongoing health. Parents who now live with their child’s glucose level in constant view may feel burdened by this level of information and responsibility. Glucose levels vary so rapidly this younger age group and parents have told us that this  creates a great sense of angst for them. Then when their child is at school and involved in other away from home activities, they can see the results from afar, yet when out of their control and this moves their angst to the next level. Another problem occurs when the technology fails and they are left without a constant feed of information, often making them feel totally helpless.

The aim of this study: To clarify the burdens that parents of children and adolescents with diabetes may experience when using CGM, the actions taken and resources available to mitigate them, leading to the development of a supportive toolkit. 

Design & methods

This is a multiple-method study involving four phases; 1) a literature review, 2) an exploration of the Burden of Treatment Theory in this context,3)  interviews with parents and diabetes clinicians, 4) to then apply what is learned from these phases to identify supportive resources for parents in the future

Medicine (26) Nursing & Health (27)

References

1. Cappon G, Vettoretti M, Sparacino G, Facchinetti A. Continuous Glucose Monitoring Sensors for Diabetes Management: A Review of Technologies and Applications. Diabetes Metab J. 2019 Aug;43(4):383-397. doi: 10.4093/dmj.2019.0121. PMID: 31441246; PMCID: PMC6712232.
2. Maria Ida Maiorino, Simona Signoriello, Antonietta Maio, Paolo Chiodini, Giuseppe Bellastella, Lorenzo Scappaticcio, Miriam Longo, Dario Giugliano, Katherine Esposito; Effects of Continuous Glucose Monitoring on Metrics of Glycemic Control in Diabetes: A Systematic Review With Meta-analysis of Randomized Controlled Trials. Diabetes Care 1 May 2020; 43 (5): 1146–1156. https://doi.org/10.2337/dc19-1459
3. Messer LH, Tanenbaum ML, Cook PF, et al. Cost, hassle, and on-body experience: barriers to diabetes device use in adolescents and potential intervention targets. Diabetes Technol Ther. 2020;22(10):760-767
4. Tanenbaum ML, Zaharieva DP, Addala A, et al. ‘I was ready for it at the beginning’: Parent experiences with early introduction of continuous glucose monitoring following their child's Type 1 diabetes diagnosis. Diabet Med. 2021;38:e14567. https://doi.org/10.1111/dme.14567
5. May CR, Eton DT, Boehmer K, Gallacher K, Hunt K, MacDonald S, et al. Rethinking the patient: using Burden of Treatment Theory to understand the changing dynamics of illnessBMC Health Services Research 2014, 14:281 http://www.biomedcentral.com/1472-6963/14/281
6. Braun V & Clarke V (2021) One size fits all? What counts as quality practice in (reflexive) thematic analysis?, Qualitative Research in Psychology, 18:3, 328-352, DOI: 10.1080/14780887.2020.1769238

 About the Project