This project will focus on understanding what outcomes are important to young people with cancer, and to find out how these outcomes can be best assessed. You will work with young people with cancer to understand their views, and with many other stakeholders, such as health professionals, charities and policy makers.
This project focuses on Adolescent and Young Adults (AYAs), aged 15-39 years with cancer. AYAs with cancer are distinct from the paediatric (<15 years) and the older adult (>40 years) cancer populations. Advances in cancer treatment have led to increased survival rates across all age groups and in AYA’s. However, despite the relatively favourable cancer prognosis, AYA cancer patients are at risk of developing other medical conditions (e.g., cardiovascular disease or second malignancies), infertility or psychosocial effects (e.g., difficulty in romantic relationships, financial toxicity due to unemployment without a prior career job), and have an increased risk of late mortality. In addition, many healthcare systems are not set up to care for this population, with young people reporting difficulties navigating the health system, and not having access to age-appropriate information. This project, which is part of international collaboration, sets out to understand the outcomes that are most important to young people, to make sure that we assess what they value most. You will work with young people with cancer to find out which outcomes are important to them, and work with all national and international stakeholders to agree on a set of outcomes for use in research and practice. The ultimate aim is to be able to collect information from young people and use this in practice and research to improve care.
How to apply:
Applications should be made online: https://www.southampton.ac.uk/study/postgraduate-research/apply
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