Enhancing Representation of Black ethnic minority groups in Public and Patient Involvement and Engagement (PPIE) Biomedical and Healthcare Research: Strategies for Overcoming Inclusion Barriers and Establishing Trustful Partnerships.


   Department of Sociology

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  Dr Natalie Darko, Prof G McCann, Prof Louise Goff  No more applications being accepted  Competition Funded PhD Project (UK Students Only)

About the Project

Project Description:

Start date 1 October 2024

In biomedical and healthcare research, the representation of underserved Black ethnic minority groups in Public and Patient Involvement and Engagement (PPIE) remains a challenge, perpetuating existing health inequalities. Often, those involved in PPIE are predominantly from dominant ethnicities and belong to higher socio-economic groups. Yet, Black minority ethnic groups facing significant health disparities in areas such as cancer, diabetes, cardiovascular diseases, and infectious diseases remain underrepresented in PPIE research. Concerns about trust, stemming from structural racism and healthcare inequalities, can hinder PPIE engagement. This PhD aims to enhance PPIE's relevance and accessibility in Leicestershire by fostering relationships across Black minority groups and addressing barriers to access. The project will involve co-creation strategies with underserved Black minority groups and healthcare researchers to address inclusion challenges and build trust in biomedical research. This will involve: (a) reviewing current PPIE process strategies and assessment frameworks; (b) conducting interviews, community conversations, and co-design workshops with Black minority groups and staff across the BRC; and (c) co-hosting dissemination events and developing an PPI impact measurement model.

Entry requirements:

Applicants are required to hold/or expect to obtain a UK Bachelor Degree 2:1 or better in a relevant subject. 

The University of Leicester English language requirements apply where applicable.

Eligibility

This programme is open to:

  • allied health professionals
  • nurses
  • midwives
  • junior doctors
  • general practitioners

Fellows recruited to the programme must be practicing healthcare professionals and be registered with a national professional regulatory body (e.g. the General Medical Council, Health and Care Professions Council) in the UK/Republic of Ireland.

Medical graduates must be registered on a UK/Republic of Ireland specialist training programme or must be a registered GP.

All fellows must have completed their undergraduate degree and be registered with the relevant professional body.

Project / Funding Enquiries to: [Email Address Removed]

Application advice:

Application help:  https://le.ac.uk/study/research-degrees/healthcare-inequalities/application-help.

To apply, please go to: https://le.ac.uk/study/research-degrees/funded-opportunities/leicestershire-healthcare-inequalities-improvement-dtp


Nursing & Health (27) Sociology (32)

Funding Notes

Funding
The Wellcome Trust LHII DTP funding will provide:
Funding will cover three years salary for each Fellow
UK Tuition Fees for three years
Experimental research costs and training

References

Black British Voices Report (2023) Available at: https://www.bbvp.org/, University of Cambridge, accessed 01/10/2023.
Bates, J. and O’Connor Bones, U., (2018) A Community Conversation Toolkit. Coleraine: Unesco Centre, Ulster University, Available at: https://www.ief.org.uk/our-work/publications/community-conversation-toolkit/, accessed 1/10/2023.
Bowleg, L., (2012). The problem with the phrase women and minorities: intersectionality—an important theoretical framework for public health. American Journal of Public Health, 102(7), pp.1267-1273.
Crenshaw K. (1989) Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics. U. Chi. Legal F. 1989; 139–168.
Gibson A., Welsman J., and Britten N. (2017). Evaluating patient and public involvement in health research: from theoretical model to practical workshop. Health Expectations: 1-10. Doi: 10.1111/hex.12486.
Greenhalgh, T., Hinton, L., Finlay, T., Macfarlane, A., Fahy, N., Clyde, B. and Chant, A., (2019). Frameworks for supporting patient and public involvement in research: systematic review and co‐design pilot. Health Expectations, 22(4), pp.785-801.
Ocloo, J., Garfield, S., Franklin, B.D. et al. Exploring the theory, barriers, and enablers for patient and public involvement across health, social care, and patient safety: a systematic review of reviews. Health Res Policy Sys 19, 8 (2021). https://doi.org/10.1186/s12961-020-00644-3
Popay J. and Collins M. (eds.) with the PiiAF Study Group (2014). The Public Involvement Impact Assessment Framework Guidance. Universities of Lancaster, Liverpool, and Exeter [Online] Available at: http://piiaf.org.uk/documents/piiaf-guidance-jan14.pdf, 02/10/2023.
Pratt B. (2019) Inclusion of Marginalized Groups and Communities in Global Health Research Priority-Setting. Journal of Empirical Research on Human Research Ethics. 2019;14(2):169-181. doi:10.1177/1556264619833858
Salas, E., Chavez, M., Piper, K. and Bultema, S., (2022) Community Engagement in Biomedical and Health Sciences Research Study. Population Health Innovation Lab (PHIL), California, US: Public Health Institute.
Wan, Y, L., Beverley-Stevenson, R., Carlisle, D., et al. (2016) Working together to shape the endometrial cancer research agenda: the top ten unanswered research questions. Gynecol Oncol. (2016); 143(2): 287-293