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Exploring and understanding the process of consumer engagement in chronic disease research, and developing resources to support collaboration between researchers and people living with chronic disease

   College of Health and Medicine

About the Project

This PhD project is embedded in a larger ARC study that aims to examine the impact of out of pocket (OOP) cost of healthcare and medicines on people with chronic disease in Australia. This project will be underpinned by the principles of consumer involvement in research, also referred to as Patient and Public Involvement (PPI), whereby people living with chronic disease will be embedded in the research from inception to completion. Consumer involvement has been found to have a positive impact on research, enhancing its quality and relevance. Researchers’ perspectives of the benefits and burdens of consumer involvement are complex and range from scepticism to enthusiasm, and support. Both positive research and personal impacts of have been identified, as well as roles that consumer co-researchers play in research teams. Our team has added to the international field of research, through the development of a theoretical model describing co-production in research about young people with Type 1 Diabetes Mellitus, and the development of an innovative Toolkit for Collaboration between People Living with MS and Researchers.

We are seeking to recruit a PhD student to expand on this research, to both strengthen the implementation of consumer involvement in our project examining out of pocket costs experienced by people living with chronic disease, and to gain depth and breadth of understanding of consumer involvement in research with people with chronic diseases. This project will commence in early 2022 and we are keen for our new student to start alongside us at this time.

This PhD will be located in the Department of Health Services Research and Policy, College of Health and Medicine, Australian National University.

The ANU provides PhD scholarships for strong international and domestic students. The scholarship value is $28,597 (indexed) for a period of 3 years full-time study. These scholarships are open to domestic and international applicants. Scholarships are competitive based and require an Australian first class honours degree or its equivalent.

Early career health and industry professionals interested in returning to higher degree studies (full-time) are strongly encouraged to apply.

Round 1 Domestic scholarship applications close 31 October 2021.

Round 2 Domestic and International scholarship applications close 15 April 2022. See the ANU Research Scholarship web page for further information. Some scholarships are open both to applicants who are Australian citizens/permanent residents or New Zealand citizens and those who are nationals of other countries, while others are open to one or other category only.

If you would like more information about this PhD project, please contact: Dr Jane Desborough at

*If you are an international applicant who is currently offshore please discuss short-term study away requirements and/or the viability of applying for a travel exemption before submitting an application. Please see the ANU Postgraduate Research web page for further details

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