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Exploring how Black, Asian and Minority Ethnic (BAME) families experience the provision of children’s palliative care in the United Kingdom


Faculty of Health Studies

About the Project

The prevalence of children with life limiting and life threatening conditions (LL/LTC) in the UK is higher in all Black, Asian and Minority Ethnic (BAME) groups (Fraser et al., 2020). There are no data on the number children from migrant families with LL/LTCs, however there is little doubt that having a child with a LL/LTC, coupled with the experience of migration is likely to exacerbate challenges faced by the family.  International research suggests that there are a number of barriers that influence how families experience palliative care for a  child with a LL/LTC (Brown et al., 2013; Watt et al., 2013; Tavallali, Jirwe and Kabir, 2017; Clancy et al., 2020; Mack et al., 2020). Despite empirical research in other countries, there are no published UK-based studies.  This PhD will focus on the experiences of BAME or migrant families living in the UK with a child or young person who has a LL/LTC.  

This PhD will be embedded in the Wolfson Centre for Applied Research, which brings together researchers from the Universities of Bradford and Leeds with clinicians from Bradford Teaching Hospitals NHS Foundation Trust. Combining the expertise of health researchers with clinicians, the Centre will ensure that its findings are put rapidly into practice – resulting in better health and social care for those who need it most, and rounded support for you as a PhD researcher. 


References

Brown, E. et al. (2013) ‘The interface between south asian culture and palliative care for children, young people, and families-a discussion paper’, Comprehensive Child and Adolescent Nursing, 36(1–2), 120–143.
Clancy, M. et al. (2020) ‘A systematic review exploring palliative care for families who are forced migrants’, Journal of Advanced Nursing, 76(11), 2872–2884.
Fraser, L. K. et al. (2020) ‘Make Every Child Count’ Estimating current and future prevalence of children and young people with life-limiting conditions in the United Kingdom. Bristol, UK.
Mack, J. W. et al. (2020) ‘Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer’, Journal of Pain and Symptom Management, 60(4), 782–789.
Tavallali, A. G., Jirwe, M. and Kabir, Z. N. (2017) ‘Cross-cultural care encounters in paediatric care: minority ethnic parents’ experiences’, Scandinavian Journal of Caring Sciences, 31(1), 54–62.
Watt, L. et al. (2013) ‘Family-centred care: A qualitative study of Chinese and South Asian immigrant parents’ experiences of care in paediatric oncology’, Child: Care, Health and Development, 39(2), 185–193.

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